2022 Sanford Burnham Prebys Rare Disease Day Symposium & CDG/NGLY1 Family Conference - Sanford Burnham Prebys
Event

Rare Disease Day Symposium & CDG/NGLY1 Family Conference

DateFeb 25 - 27, 2022
Time8:00AM-5:00PM PT
Location
The Dana Hotel on Mission Bay
1710 W. Mission Bay Drive
San Diego, CA 92109
thedana.com
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2022 Rare Disease Day SymposiumHosts
  • Hudson Freeze, PhD
  • This year’s event is organized by Sanford Burnham Prebys in partnership with CDG CARE.

Daily events

  • Friday
    Scientific Meeting and Poster Session
    8:00am–7:00pm PST

  • Saturday
    Scientific Meeting and Doctor-is-in-Session
    8:00am–4:30pm PST

  • Sunday
    CDG CARE Family Meeting
    8:00am–5:00pm PST

About the event

We proudly invite you to the 2022 Sanford Burnham Prebys Rare Disease Day Symposium & CDG/NGLY1 Family Conference, February 25-27, 2022 in San Diego, CA. The 2022 event is co-organized by Sanford Burnham Prebys and CDG CARE.

The objective of this Conference is to combine patient-centered science and real-world strategies for patients and families living with a Congenital Disorder of Glycosylation in a supportive and friendly environment. We will facilitate the meeting and collaboration of approximately 150 medical professionals and families in order to share knowledge and experience, and discuss common issues of patients living with CDG.

This joint scientific and family symposium will be held at The Dana on Mission Bay in San Diego, CA, with the scientific session on February 25-26, and the family session on February 27, 2022. To learn more about the symposium and family conference, including confirmed speakers and topics, click the red button.


Symposium/Speaker Agenda

Please check back for updates

Please note that speakers and topics are subject to change. To facilitate communication between the scientific and family communities, all participants are encouraged to attend the full symposium.