SBP Archives - Sanford Burnham Prebys
Institute News

“A Grand Canyon Aria” benefits SBP research

AuthorHelen Hwang
Date

June 4, 2018

A father’s love never dies, even when his child has succumbed to a fatal childhood disease. Alex Syed paid tribute to his daughter, Aria, by running a marathon through the majestic Grand Canyon in May 2018. Ten years ago, Aria passed away after suffering from congenital disorders of glycosylation, known as CDG—a disease that affects the way proteins and sugar molecules interact in the body.

In honor of his daughter, Syed raised more than $4,300 from 71 donors to fund important research in the laboratory of Hudson Freeze, PhD, professor and director of the Human Genetics Program at Sanford Burnham Prebys Medical Discovery Institute (SBP). Freeze is one of the world’s leading experts on CDG.

“Funding is always in short supply, so the donations that Alex raised in the name of Aria will bring us closer to finding a cure for other kids suffering from this devastating disease,” says Freeze. “Aria’s cells are in our lab to support experiments that will help build a database for possible therapies,” he adds.

To prepare for the run, which Syed dubbed “A Grand Canyon Aria,” he rose in the middle of the night to begin his 26-mile run from the South Rim via Bright Angel to North Rim, taking him over the mighty Colorado River.

Running through the Grand Canyon to raise money for Dr. Freeze’s research was Syed’s idea. He knows that rare genetic diseases do not receive a lot of funding from large pharma companies. “The almost-angelic work that Dr. Hud Freeze and his team are performing at SBP is truly unique,” says Syed.

To donate, go to sbpdiscovery.org/CDG.

Watch the video of Alex Syed’s run through the Grand Canyon in memory of Ari:

Watch the video from Dr. Hudson Freeze’s lab:

Institute News

Cancer Moonshot satellite summit held at Sanford Burnham Prebys

AuthorJessica Moore
Date

July 7, 2016

Our institute was one of ten sites in the U.S. selected to co-host an official summit as part of the kick-off for Vice President Joe Biden’s Cancer Moonshot. This $1 billion initiative “aims to make more therapies available to more patients, while also improving our ability to prevent cancer and detect it at an early stage.” The funds support new cancer research programs within the NIH and the Departments of Defense and Veterans Affairs, as well as data sharing infrastructure and efforts by the FDA to expedite development of new cancer drugs and diagnostics.

The SBP event, held on the same day as the Vice President’s summit in Washington, DC, brought together oncologists, cancer researchers, cancer survivors and their families, developers of cancer therapeutics, and leaders of key institutions making an impact on cancer in southern California. This diverse participation provided opportunities to make connections, get inspired, and find potential collaborators.

The program included an explanation of how scientific leaders are shaping the initiative, a videocast of the vice president’s speech, and three panel discussions of hopes and concerns for the program. The inside take on the Moonshot’s development was given by María Elena Martínez, PhD, professor of Family Medicine and Public Health at the UC San Diego Moores Cancer Center, one of 30 experts on the Blue Ribbon Panel that is developing recommendations for action.

Several messages emerged from SBP’s summit, including:

  • Sustained research funding is required to ensure significant progress
  • Improving clinical trials (enhancing participation and streamlining approvals) is key to accelerate the pace of drug development
  • Data sharing systems must be built up to reap maximum benefits from cutting-edge methods of profiling tumors

The event was covered by multiple local news outlets, including KPBS and KUSI, and livestreamed through Facebook (video available here and here).

Garth Powis, D.Phil., director of the NCI-designated Cancer Center at SBP, was called to take part in the summit in Washington, DC.

“It was worthwhile to be there and see how the White House is interacting with the NCI,” Powis said. “Much of the focus was on big data. GSK is working with the Department of Energy to get the Veterans Administration organized and IBM is using their super computer ‘Watson’ to consolidate patient records.”

The Moonshot promises to accelerate cancer research in San Diego, given its position as a major hub for biomedical science, though no funds have yet been distributed.

 

Institute News

Happy 40th, Sanford Burnham Prebys!

AuthorJessica Moore
Date

July 7, 2016

Today marks the 40th anniversary of our institute, which was founded on July 7, 1976 as the La Jolla Cancer Research Foundation. The institute that Dr. William and Lillian Fishman started in a renovated apartment building with equipment built from spare parts has since become ;a world-renowned research organization. The original staff of five has now grown to over 1,000 employees, including more than 700 scientists.

The City of San Diego has declared today, July 7, 2016 “Sanford Burnham Prebys Medical Discovery Institute Day.” Mayor Faulconer’s Director of Outreach, John Ly, came to SBP to deliver the proclamation, which highlights 40 years of scientific successes.

SBP will continue to celebrate its 40 years of success with various events over the next 12 months.